Incyte Corp. recently joined with the National Organization for Rare Disorders, the European Organization for Rare Disease and other groups in recognizing Rare Disease Day 2017.
“Raising awareness and educating the global community about rare diseases is critical to helping improve the lives of patients and families affected by these conditions,” Incyte CEO Hervé Hoppenot said in a statement. “Rare Disease Day provides an opportunity to honor and give a voice to those impacted by rare diseases, including the estimated 200,000 individuals in the U.S. living with myeloproliferative neoplasms (MPNs), a closely related group of rare blood cancers.”
To raise awareness for MPNs, which are chronic, progressive blood cancers that can affect anyone at any age, Incyte teamed up with ABC’s "General Hospital." In the show, the character portrayed by actress Finola Hughes is diagnosed with polycythemia vera (PV), one of the main types of MPN. The goal of the partnership is awareness, and also to provide inspiration to patients affected by the disease.
“I am honored to lend my voice on and off the set of General Hospital to help more people understand the impact MPNs, including PV, can have on patients and their families,” Hughes said.
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